Be proactive about your XLH care
X-linked hypophosphatemia (XLH) symptoms can change over time. Even if they seem mild now, they could still get worse.
Because XLH is lifelong, staying consistent with that care is important. Your healthcare team will work with you to develop the right management plan.
Alice and her father, Jason
Both living with XLH
Continued management of XLH throughout your life is extremely important. It’s going to change the older you get.
Gini, living with XLH
XLH isn’t just a childhood Condition
XLH is a lifelong condition that affects growth and mobility. It can cause pain and lead to fractures and pseudofractures. These challenges may affect your mental health and relationships.
Finding the right diagnosis and care can help you manage your symptoms.
Living with XLH?
You’re not alone.
Built from a survey of people with XLH, explore real-world experiences that go far beyond a list of physical symptoms.
learn moreRaquel, living with XLH
Management options
After an XLH diagnosis, talk with your doctor about which treatment and care strategies may be right for you or your child.
Management strategies may include:
Medications and supplements
Corrective bone surgeries
Dental care
Physical/occupational therapy and pain management techniques
Explore an FDA-approved treatment for XLH
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COMM-US-RDS-1000 August 2026