Hear stories from
real people with XLH
Just knowing that there was an answer and a reason why was probably the best part of learning my diagnosis."
"Just knowing that there was an answer and a reason why was probably the best part of learning my diagnosis."
Meet Mackenzie and Rhonda
"Living with a rare disease—it just means that I am a human that has an obstacle in their life to overcome."
"Try not to focus on having a disease...and live your life to the fullest."
"You just have to check in with your own body...I think the point should be to have a good life."
"Don’t give up. If you’re like me, you don’t know what’s going on until later in life and there’s answers out there."
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