HEAR stories from people living with XLH
X-linked hypophosphatemia (XLH) is rare, but you’re not alone. Hear from others who understand the daily realities and learn how they navigate life with XLH.
Meet Emily
“Just knowing that there was an answer and a reason why was probably the best part of learning my diagnosis.”
Hear Her Story
Mackenzie & Rhonda
“Living with a rare disease—it just means that I am a human that has an obstacle in their life to overcome.”
CHERYL
“Try not to focus on having a disease...and live your life to the fullest.”
GINI
“You just have to check in with your own body...I think the point should be to have a good life.”
Patient Ambassadors in the above videos received compensation from Kyowa Kirin for their engagement.
COMM-US-RDS-1000 August 2026