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Caregiver resources

Downloadable XLH resources

Cover of XLHLink brochure for caregivers

Caregiver Brochure

This resource explains the basics of XLH for caregivers interested in learning more about the condition and its cause.

Start Planning Your Child's Future with XLH

Start Planning Your Child's Future with XLH

Help your child understand how to manage their XLH through the years.

XLH Dental Medical Necessity Sample Letter

Dental Medical Necessity Letter

This letter is an example of the type of information that can be provided to your medical insurance company as needed for your child's XLH-related dental treatment.

The information provided here is intended for informational and educational purposes only, and should not be considered a guarantee of treatment or coverage.
The letter i within a diamond denoting a callout


Need help preparing for your child's appointment? The XLH discussion guide can help.

Discussion guide
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