Skip to main content
Welcome to the new updated XLHLink.com!
Resources

Resources

Doctor discussion guide

Actor portrayal

Preparing for a discussion with your doctor

A tool to help you talk to your doctor

When it comes to diagnosing XLH, your doctor needs all the help they can get. This assessment tool can help you paint a clear picture of your or your child's symptoms and the impact they have. Just answer a few short questions and share your results with the doctor.

Download the right guide for you and be sure to fill it out before your next appointment.

Guide for patients Guide for caregivers
Join the community

Sign up to receive helpful resources, get important event invites, and hear real patient stories that will support you on your journey.

Sign up