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Navigating XLH and the Transition to Adult Care

Register now for this free online event

Need help? See our FAQs below or call 1-844-648-0700

Transitioning from pediatric to adult care can be a big adjustment, but proactive planning can make the process smoother... more

Please fill out the information below. An asterisk (*) denotes a required field.

Contact information

Tell us about yourself

Please select
Caregiver of a minor patient with XLH (6 months - 17 years old)
Family Member
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Diagnosed with XLH/considering management options
Currently managing XLH
Multiple family members in stages of XLH journey
Please select
Doctor's Office
Family Member
Advocacy/Support Group
Social Media
Email

† By clicking submit, I represent I am 18 years old or older and competent to agree, or I am the legal guardian of a child younger than 18 years old and agree on behalf of such younger child, that Kyowa Kirin, or companies acting on its behalf, may send me news and updates about Kyowa Kirin products, clinical trials, programs, and other information that may be of interest to me. I may opt out at any time, instructions for which will be included in each email I receive. I understand that Kyowa Kirin, and companies acting on its behalf, will not sell or rent my personally identifiable information, and will only use my personal information as described in the Kyowa Kirin Privacy Policy and Terms of Use.

Frequently Asked Questions About XLH Events

These events are intended for individuals in the U.S. living with XLH and their families and caregivers.

Identify the event you would like to attend, click the register button, and complete the registration form. Once you have registered, you will receive a confirmation email with program details.

We recommend downloading the Zoom app in advance for the best experience, but you can also join using a web browser.

If you are having difficulty with the online registration, please call 1-844-648-0700

Check your spam or junk folder first. If you still can’t find the email, contact 1-844-648-0700 at least a day before the event.

No, there is no cost to attend these programs.

Pre-registration is required for all online events. Upon registering and about 1 day before the event, you will receive a confirmation email with the login information and event URL. These emails include helpful information about logging in to the session and a help desk phone number to call if you are having difficulty connecting.

For online events, please log on to the session 5 minutes before the start of the program.

If you try to join early, you may see this message. Please wait until the start time.

Zoom is a video conferencing and communications platform that allows users to connect with video, audio, phone, and chat.

No, you do not need a Zoom account to join the online event. Simply use the link provided in your confirmation or reminder email.

Yes, you can join from a smartphone or tablet using the Zoom app. Make sure you have a stable internet connection.

No, attendees will be automatically muted and your camera will be off.

Check your internet connection and try refreshing the link. You can also close Zoom and rejoin. If issues persist, call the help desk number in your reminder email.

Yes, there will be a Q&A feature during the session. You can type your questions into the Q&A box at any time.