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Cover of the 'Your Journey With XLH' patient and caregiver brochure featuring Shannon smiling

Patient & Caregiver Brochure

Learn the basics of XLH, including what it is and what causes it.

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Cover of the 'Planning for the Future with XLH' guide featuring a mother and teenage daughter together

Planning for the future with XLH

Help your child prepare to manage their care as they transition to adulthood.

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Sample dental coverage letter document for XLH-related care

Dental Coverage Letter

A sample letter for your provider to support insurance coverage for XLH-related care.

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Cover of the XLH Family Inheritance Guide brochure, showing a family of three together

XLH Family Inheritance Guide

Understand how XLH is passed down and how to take the next steps in care.

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How to talk to your doctor

This Doctor Discussion Guide can help you paint a clear picture of the symptoms you or your child are experiencing so you can discuss them with your healthcare team.

Download the right guide for you, fill it out before your next appointment, and share it with your doctor.

Guide for patients Guide for Caregivers

JoBeth

Mother to Karabeth, who is living with XLH

JoBeth, mother to Karabeth who is living with XLH, sitting on a wooden chair and smiling
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A checklist

Check out upcoming XLH events

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COMM-US-RDS-1002 August 2026