Support for adults with XLH

Living with a chronic condition can be challenging, but that doesn’t mean you can’t live a fulfilling life.

By having a lot of information about XLH and staying informed, you can gain a better understanding of how to manage your condition.

Jean, living with XLH

Be an advocate for yourself and X-linked hypophosphatemia

Become an advocate for yourself and for XLH.

Develop a support system for X-linked hypophosphatemia

Find and cultivate the support system you need. See below for strategy and tips.