Support for adults with XLH

Jean, an XLH patient

Living with a chronic disease can be challenging, but that doesn’t mean you can’t live a fulfilling life. By having a lot of information about XLH, and staying informed, you can gain a better understanding of how to manage your disease.

Become an advocate for XLH

Become an advocate for yourself and for XLH.

Find and cultivate an XLH support system

Find and cultivate the support system you need. See below for strategy and tips.