XLH Transitions Toolkit
Transitioning into adulthood for children with XLH can present unique challenges. The Transitions Toolkit can help you manage shifting priorities while navigating changes to day-to-day routines and responsibilities.
A family
RESOURCES FOR TRANSITIONING TO ADULTHOOD
XLH TRANSITION OF CARE GUIDE
This guide will introduce you and your child to the transition process from a pediatric to an adult healthcare provider. Use it with the XLH Transitions Toolkit to help assess your child’s transition readiness and organize medical information to help ensure your child’s continued management with no interruption of care.
The XLH Transitions Toolkit is your guide to navigating changes in health and life with XLH
The XLH Transitions Toolkit is your guide to navigating changes in health and life with XLH
This toolkit is designed to provide information and resources to help young adults with XLH and their parents/caregivers prepare to transition to adult healthcare. It will also spark some thoughts about other parts of adulthood with XLH—from dating to managing mental health.
XLH SELF-CARE ASSESSMENTS
These self-care assessments are designed to help you and your child understand their level of preparedness for taking over their own healthcare as an adult.
RESOURCES FOR NAVIGATING TRANSITIONS IN ADULTHOOD
Living with XLH, you may have many questions during important and exciting life transitions. These resources will give you guidance on navigating college, getting your first job, dating and relationships, and taking care of your mental health.
RESOURCES FOR COMMUNICATING WITH MEDICAL PROFESSIONALS AND UNDERSTANDING HEALTH INSURANCE
Communicating clearly with healthcare professional will help to ensure that you or your loved one receive proper and necessary care. These resources will help you advocate for your health, understand health insurance, and provide guidance for how to get the most out of your doctor’s visits.
Have questions about XLH?
Attend an event and learn more from the
