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Welcome to the new updated XLHLink.com!

XLH LINK EVENTS

Patient resources

Join us for upcoming events featuring the latest insights on X-linked hypophosphatemia (XLH).

We use Zoom for online events, no download required! It’s available for anyone with an internet connection and a desktop or mobile device.

Coming soon

Stay tuned for more upcoming online and in-person events! This site will be updated with all upcoming event details, so check back here regularly for the latest information, or sign up to be notified about XLH Link events in the future.

Online Events

Connect and learn with our online events, hosted on Zoom and free to attend. Join us from the comfort of your home to hear the latest findings and perspectives on XLH.

In-person Events

Come join us to experience the excitement of our in-person events and hear from industry experts on the latest developments in XLH.

Sign up and join the XLH Link Community to get info about future events.

Sign up now

Frequently Asked Questions About XLH Events

These events are intended for individuals in the U.S. living with XLH and their families and caregivers.

Identify the event you would like to attend, click the register button, and complete the registration form. Once you have registered, you will receive a confirmation email with program details.

We recommend downloading the Zoom app in advance for the best experience, but you can also join using a web browser.

If you are having difficulty with the online registration, please call 1-844-648-0700

Check your spam or junk folder first. If you still can’t find the email, contact 1-844-648-0700 at least a day before the event.

No, there is no cost to attend these programs.

Pre-registration is required for all online events. Upon registering and about 1 day before the event, you will receive a confirmation email with the login information and event URL. These emails include helpful information about logging in to the session and a help desk phone number to call if you are having difficulty connecting.

For online events, please log on to the session 5 minutes before the start of the program.

If you try to join early, you may see this message. Please wait until the start time.

Zoom is a video conferencing and communications platform that allows users to connect with video, audio, phone, and chat.

No, you do not need a Zoom account to join the online event. Simply use the link provided in your confirmation or reminder email.

Yes, you can join from a smartphone or tablet using the Zoom app. Make sure you have a stable internet connection.

No, attendees will be automatically muted and your camera will be off.

Check your internet connection and try refreshing the link. You can also close Zoom and rejoin. If issues persist, call the help desk number in your reminder email.

Yes, there will be a Q&A feature during the session. You can type your questions into the Q&A box at any time.

JOIN THE COMMUNITY

Sign up to receive helpful resources, get important event invites, and hear real patient stories that will support you on your journey. 

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