Community and online resources
XLH resources and advocacy groups
Although XLH is a rare disease, you are not alone. There are patient support and advocacy organizations that provide useful information and resources to the XLH community. You can learn about them at the links below.
Kyowa Kirin is a proud sponsor of The XLH Network, NORD, and their goals.
The XLH Network
The XLH Network, a 501(c)(3) nonprofit organization, seeks to connect people around the world who are affected by or interested in learning more about XLH. The XLH Network connects affected individuals, families, and medical professionals.Visit website
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