Patient & Caregiver Brochure
Learn the basics of XLH, including what it is and what causes it.
Download
Planning for the future with XLH
Help your child prepare to manage their care as they transition to adulthood.
Download
Dental Coverage Letter
A sample letter for your provider to support insurance coverage for XLH-related care.
Download
XLH Family Inheritance Guide
Understand how XLH is passed down and how to take the next steps in care.
Download Build a family treeHow to talk to your doctor
This Doctor Discussion Guide can help you paint a clear picture of the symptoms you or your child are experiencing so you can discuss them with your healthcare team.
Download the right guide for you, fill it out before your next appointment, and share it with your doctor.
JoBeth
Mother to Karabeth, who is living with XLH
COMM-US-RDS-1002 August 2026